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What is the arterial tortuosity syndrome, its clinical features and problems?

Associated tags: arterial tortuosity syndrome, Genetics

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Question answered:27/07/07 Warning! this question is over two years old.

We found relatively little on this condition.  The most comprehensive document was contained in the OMIM database [1] which describes a number of case reports on the subject.  A number of the references in that article point to recent publications by one author P J Coucke (whose e-mail is paul.coucke@rug.ac.be) .  One of these articles reports:

 

“Arterial tortuosity syndrome (ATS) is an autosomal recessive disorder characterized by tortuosity, elongation, stenosis and aneurysm formation in the major arteries owing to disruption of elastic fibers in the medial layer of the arterial wall.”

 

A website called Humpath (which we’ve never used before) gives the following information [3]:

 

“Arterial tortuosity syndrome (ATS) is a rare hereditary disorder with variable clinical presentation including tortuosity and elongation of the major arteries, often associated with pulmonary artery stenosis, pulmonary hypertension, and skin and joint laxity, suggestive of a connective tissue disorder. ATS is transmitted in an autosomal recessive mode, but the causal gene is unknown.

 

Synopsis
 -  arterial tortuosity
 elongation of the main arteries
 severe peripheral stenosis of the main pulmonary artery
 soft skin with abundant subcutaneous tissue
 joint laxity
 hernias”

 

Finally, you may be interested in another case report, which reported on cardiac findings in a newborn with ATS [4]

 

References

1) http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=208050
2) http://pmid.us/16550171
3) http://www.humpath.com/arterial-tortuosity-syndrome
4) http://eurheartj.oxfordjournals.org/cgi/rapidpdf/ehi836v1

 


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